Hemophilia Medical Coverage
Hemophilia medical coverage can be very expensive. Hemophilia treatment is among
one of the most expensive chronic diseases in the United States. New
technology like recombinant dna technology improves the safety of
new blood products, but new technology is really expensive.
Healthcare is expensive nationwide, however, research and development for many of the specialized products used by people with hemophilia come with a huge price tag. Currently, hemophilia therapy is among the most expensive in the world with a total annual costs per patient ranging from $60,000 to as much as $1,000,000 for some patients. Many patients are on a prophylactic treatment plan requiring an intravenous(IV) infusion 3 times per week, for life. One infusion for an adult weighing 150 lbs. is approximately $3000 for the medication alone. The average cost for adult patients on a prophylactic regiments at this rate is currently $468,000 annually.
Complications such as undergoing immune tolerance
for an inhibitor, major surgery, HIV/AIDS and/or hepatitis treatments,
can increase the costs of hemophilia medical coverage exponentially.
Methods of insurance reimbursement are changing constantly and patients and hematologists alike find the system difficult to manage and confusing.
We
have been dealing with insurance companies since our oldest son
was born and we have gotten pretty good at it. I can totally eliminate
the stress of dealing with your insurance company. You don't shouldn't
have to bear that burden. You have enough to deal with. All you
need to do is contact
us and we can take over from there. Please let us know how I
can assist you with your hemophilia medical coverage needs.
Private insurance
Private insurance companies vary a lot from state to state. It is hard to know what they can do for you without asking specifically for information about your hemophilia medication. We are happy to help you with this. Over the years we have developed a talent for asking the right questions of the insurance companies - and getting answers.
We can contact your insurance company for you and
work out an arrangement. If you would like us to talk with your
insurance, just contact
us and we will get with you as soon as we can.
Many insurance plans have lifetime caps. Sometimes
this is a worry for people with hemophilia. I can understand why.
The very idea that your insurance will ever stop is a frightening
concept. We can answer your questions regarding this also. Just
call any time at (877) 836-7832 or email me using
this form with questions about your hemophilia medical coverage.
Government Programs
Federal ProgramsSocial Security Disability or Medicare is sometimes used by people with hemophilia. Especially older and disabled people.
State ProgramsMost state’s medical aid programs are called Medicaid. In California it is called “Medi-Cal” in Tennesee it is called “Tenn-Care”.
In addition to these “Medicaid” programs, most states have other programs for people with genetic disorders. California has “Genetically Handicapped Persons Program” GHPP for adults and California Children’s Services” CCS.
Most states have high risk insurance pools but these are usually expensive to join.
Financial Aid
There are non-profit organizations that help people
with chronic disorders pay their insurance. We donate to these organizations
so that they can assist people suffering from hemophilia with their
hemophilia medical coverage. We can help introduce individuals to
these organizations. They are doing a wonderful work and we are
happy to introduce you to them if that is what you need.
Links and Resources
The following are some great resources for people
with hemophilia having medical coverage difficulties. If you have
any questions or need any assistance please contact us we are here
to help.
PSI - PATIENT SERVICES,INC
www.uneedpsi.org
MEDICARE
www.cms.hhs.gov/home/medicare.asp
MEDICAID
www.cms.hhs.gov/home/medicaid.asp
SSI - SOCIAL SECURITY INCOME
www.ssa.gov/ssi
SSDI - SOCIAL SECURITY DISABILITY INCOME
www.ssa.gov/disability
CHIP - COMPREHENSIVE HEALTH INSURANCE PROGRAMS
www.naschip.org
SCHIP - STATE CHILDRENS HEALTH INSURANCE PROGRAM
www.cms.hhs.gov/home/schip.asp
TITLE V CSHNP - CHILDREN WITH SPECIAL HEALTHCARE NEEDS
PROGRAM
www.cshcnleaders.ichp.edu/TitleVDirectory/directory
HIPP - HEALTH INSURANCE PREMIUM PROGRAM
www.dhs.ca.gov/publications/forms/hipp
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