Hemophilia Medical Coverage

Hemophilia medical coverage can be very expensive. Hemophilia treatment is among one of the most expensive chronic diseases in the United States. New technology like recombinant dna technology improves the safety of new blood products, but new technology is really expensive.

Healthcare is expensive nationwide, however, research and development for many of the specialized products used by people with hemophilia come with a huge price tag. Currently, hemophilia therapy is among the most expensive in the world with a total annual costs per patient ranging from $60,000 to as much as $1,000,000 for some patients. Many patients are on a prophylactic treatment plan requiring an intravenous(IV) infusion 3 times per week, for life. One infusion for an adult weighing 150 lbs. is approximately $3000 for the medication alone. The average cost for adult patients on a prophylactic regiments at this rate is currently $468,000 annually.

Complications such as undergoing immune tolerance for an inhibitor, major surgery, HIV/AIDS and/or hepatitis treatments, can increase the costs of hemophilia medical coverage exponentially.

Methods of insurance reimbursement are changing constantly and patients and hematologists alike find the system difficult to manage and confusing.

We have been dealing with insurance companies since our oldest son was born and we have gotten pretty good at it. I can totally eliminate the stress of dealing with your insurance company. You don't shouldn't have to bear that burden. You have enough to deal with. All you need to do is contact us and we can take over from there. Please let us know how I can assist you with your hemophilia medical coverage needs.

Private insurance

Private insurance companies vary a lot from state to state. It is hard to know what they can do for you without asking specifically for information about your hemophilia medication. We are happy to help you with this. Over the years we have developed a talent for asking the right questions of the insurance companies - and getting answers.

We can contact your insurance company for you and work out an arrangement. If you would like us to talk with your insurance, just contact us and we will get with you as soon as we can.

Many insurance plans have lifetime caps. Sometimes this is a worry for people with hemophilia. I can understand why. The very idea that your insurance will ever stop is a frightening concept. We can answer your questions regarding this also. Just call any time at (877) 836-7832 or email me using this form with questions about your hemophilia medical coverage.

Government Programs

Federal ProgramsSocial Security Disability or Medicare is sometimes used by people with hemophilia. Especially older and disabled people.

State ProgramsMost state’s medical aid programs are called Medicaid. In California it is called “Medi-Cal” in Tennesee it is called “Tenn-Care”.

In addition to these “Medicaid” programs, most states have other programs for people with genetic disorders. California has “Genetically Handicapped Persons Program” GHPP for adults and California Children’s Services” CCS.

Most states have high risk insurance pools but these are usually expensive to join.

Financial Aid

There are non-profit organizations that help people with chronic disorders pay their insurance. We donate to these organizations so that they can assist people suffering from hemophilia with their hemophilia medical coverage. We can help introduce individuals to these organizations. They are doing a wonderful work and we are happy to introduce you to them if that is what you need.

Links and Resources

The following are some great resources for people with hemophilia having medical coverage difficulties. If you have any questions or need any assistance please contact us we are here to help.
 
PSI - PATIENT SERVICES,INC
www.uneedpsi.org

MEDICARE
www.cms.hhs.gov/home/medicare.asp

MEDICAID
www.cms.hhs.gov/home/medicaid.asp

SSI - SOCIAL SECURITY INCOME
www.ssa.gov/ssi

SSDI - SOCIAL SECURITY DISABILITY INCOME
www.ssa.gov/disability

CHIP - COMPREHENSIVE HEALTH INSURANCE PROGRAMS
www.naschip.org

SCHIP - STATE CHILDRENS HEALTH INSURANCE PROGRAM
www.cms.hhs.gov/home/schip.asp

TITLE V CSHNP - CHILDREN WITH SPECIAL HEALTHCARE NEEDS PROGRAM
www.cshcnleaders.ichp.edu/TitleVDirectory/directory

HIPP - HEALTH INSURANCE PREMIUM PROGRAM
www.dhs.ca.gov/publications/forms/hipp

 

Click here to return to the Homepage from "Hemophilia Medical Coverage"



You Can Be Part of the Solution!

By ordering your factor through "Homecare for the Cure," you, too, can be a part of the answer because a portion of every order goes towards finding a cure for hemophilia. So far we have spent over $ 200,000.00 getting the word out to the hemophilia community that there is wonderful research out there that will one day provide a cure for hemophilia. The more families like yours that join us, the more we can donate and increase the pace of hemophilia research. If you would like to help fund research for the cure simply by having us provide your hemophilia medications and supplies, give us a call at (877) 836-7832 or use our Contact Us form.


Karl & Della Score